Privacy Policy for Incurably Wonderful
Effective Date: January 2024
This Privacy Policy explains how Incurably Wonderful, a UK-based Community Interest Company (CIC), collects, uses, stores, and protects your personal data in accordance with the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018. We are committed to safeguarding your privacy and ensuring transparency about how we handle your information.
1. Who We Are
Incurably Wonderful is a Community Interest Company (CIC) and social enterprise registered in the United Kingdom.
Mission Statement
Incurably Wonderful is a patient-led Community Interest Company dedicated to enhancing the lives of adults with chronic conditions and disabilities. Our mission is to empower individuals to flourish despite health challenges by providing an inclusive, supportive, and vibrant community. We focus on fostering well-being, self-confidence, and meaningful social connections, ensuring that every member can participate fully in community life.
Core Activities
- Organising accessible and inclusive social, educational, and physical activities tailored to the needs of adults with chronic conditions and disabilities.
- Providing support groups, discussion forums, and peer-led online and in-person events to reduce isolation and promote community engagement.
- Offering adapted exercise sessions to promote physical well-being.
- Delivering educational resources and workshops that equip members with skills, knowledge, and coping strategies for managing their health and improving quality of life.
- Raising awareness and advocating for the needs of people with chronic conditions and disabilities among the public, businesses, and service providers.
- Collaborating with government and private sector organisations to improve access to comprehensive support and resources for adults with chronic physical illnesses.
2. What Data We Collect
We may collect and process the following types of personal data:
- Name
- Contact details (address, email, phone number)
- Demographic information (such as age, gender, etc., if provided)
- Information you provide through forms, emails, or participation in our programmes
- Website usage data (such as IP address, cookies, and analytics data)
We only collect data that is necessary for our activities and in line with our community benefit objectives.
3. How We Use Your Data
We use your personal data for the following purposes:
- To manage our community programmes and services
- To communicate with you about our activities, events, or updates
- To respond to your enquiries or requests
- To comply with legal and regulatory obligations
- For internal record-keeping and administration
We will only use your data for the purposes for which it was collected, or as otherwise permitted by law.
4. Lawful Basis for Processing
We process your personal data based on one or more of the following legal grounds:
- Your consent (where you have given it)
- To fulfil our legitimate interests as a CIC (such as running our services)
- To comply with legal obligations
You have the right to withdraw your consent at any time.
5. Data Sharing
We do not sell your personal data. We may share your data with:
- Service providers who assist us in delivering our services (e.g., IT support, email platforms)
- Regulatory bodies or authorities, where required by law
- Partners or funders, but only in anonymised or aggregated form unless you have consented otherwise
Any third parties are required to comply with data protection laws and keep your data secure.
6. Data Security
We implement appropriate technical and organisational measures to protect your personal data from unauthorised access, loss, or misuse. Only authorised personnel and volunteers have access to your data.
7. Data Retention
We retain your personal data only as long as necessary for the purposes for which it was collected, or as required by law. When data is no longer needed, it will be securely deleted or anonymised.
8. Your Rights
Under the UK GDPR, you have the right to:
- Access the personal data we hold about you
- Request correction or deletion of your data
- Object to or restrict our processing of your data
- Withdraw consent (where processing is based on consent)
- Lodge a complaint with the Information Commissioner’s Office (ICO)
To exercise your rights, please contact us using the details below.
9. Cookies and Website Analytics
Our website may use cookies and analytics tools to improve your experience and understand how visitors use our site. You can manage your cookie preferences through your browser settings.
10. Contact Us
If you have any questions about this Privacy Policy or wish to exercise your rights, please contact:
Email: incurablywonderful@gmail.com
11. Changes to This Policy
We may update this Privacy Policy from time to time. The latest version will always be posted on our website with the effective date.
By using our website or engaging with Incurably Wonderful, you acknowledge that you have read and understood this Privacy Policy.
This policy is designed to meet the legal requirements for UK community interest companies and social enterprises, ensuring transparency and compliance with the UK GDPR and Data Protection Act 2018.
